Millions of young people could miss out on effective treatments because so few take part in medical research, experts warn.
New data show that 18- to 24-year-olds make up 8% of England’s population but only 4.4% of medical study participants, meaning treatments are often designed for older adults. Between 2021 and 2024, only 32,879 young adults took part in 5,000-plus studies backed by the National Institute for Health and Care Research (NIHR).
“Young people face unique health challenges shaped by social pressures and life transitions,” said Kirsty Blenkins of the Association for Young People’s Health. “If they’re not included, treatments may not be safe or effective for them.”
Barriers include low awareness, poor recruitment targeting, and concerns about confidentiality. NIHR’s Dr Esther Mukuka said many don’t realise research covers everyday conditions such as asthma, diabetes, and mental health.
The NIHR is urging more participation through a national volunteer registry. “Even if you’re healthy, taking part helps shape the NHS of tomorrow,” Mukuka said.
Experts also warn that women and ethnic minorities are underrepresented, risking health inequalities if research continues to overlook diverse groups.
